living our best life – physical activity

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Welcome friends and thank you very much for stopping by today.  This week my question has to do with physical acitivity.  This is a tough area for many people with chronic illness since there are some that respond poorly to exercise.  No matter what  illness label you hold, fatigue is always a side effect making exercise something that takes a lot will power to overcome the desire to climb back into bed.

We read, watch, and are told that exercise is an important part of a healthy lifestyle which can lead to guilt and disappointment when we cannot participate in the physical activities that we were once able to enjoy.

So, this week’s question is, What physical movement do you participate in? 

Over the years I have been able to do as little as, yay! I walked up and down the stairs today or to the mailbox.  Currently I am able to take my dog on a short walk, walk in the park, get on the treadmill or exercise bike but have discovered that 30 minutes is about my limit or I pay for it the next day.

Please take a moment to share what works for you.  I am sure many of us are looking for new ways to move our bodies.  Thank you!

 

  • We are not providing any medical advice, only ideas of what works for us.
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living our best life possible – organization

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Chronic illnesses tend to have a dreaded side affect of memory issues which can be  extremely frustrating.

Through the years, I have experimented with different approaches towards keeping myself organized and on track.  The ways have changed as the kids have grown,  but I have found that now they are in their busy stage of life, I must keep a very detailed  schedule.

At this time,  I use my cell phone and a wall calendar to keep track of daily appointments, celebrations, work schedules, really anywhere I need to be and when.  Then, I write out my daily to-do list on an index card so I can carry it with me throughout the day (if I don’t forget it, that is 🙂 )

Which leads me to this week’s questions, How do you keep yourself organized?

Please take a moment to share!  I deeply appreciate all of you who take the time to leave information in the comment section.  I have learned a lot from all of you and I am sure others have too!  Thank you.

 

 

~ wendi is the author of three books and can be seen here.

living our best life possible – books

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We read to know we are not alone. —C.S. Lewis

 

I love to learn and therefore I read.  Reading is something I have struggled with since I was a young child, eventually discovering that I was dyslexic.  But, I kept at it, and now I  enjoy reading, although I am a slow and struggle with comprehension and retention.  So, if I think the book is important, I take notes.

Through this journey called life, I have read a lot of books, mostly nonfiction.  For a while, I mostly read books on natural healing, trying to discover ways to help myself where western medicine continued to fail me.

There are several books that have helped me on this health journey and I would like to share them with all of you.  I realize all of our journeys are unique, but I feel that these three books could be beneficial to some.

The Grain Brain Whole Life Plan by David Perlmutter, MD

The UltraMind Solution by Mark Hyman, MD

Tired of Being Tired by Jesse Lynn Hanley, MD and Nancy Deville

 

So the question today is:

What book(s), if any, have you found helpful in your journey to heal?

Please take a moment to leave a comment below.  I truly believe we are here to assist each other in life, and your recommendation may be the one that brings someone relief.

Thank you ~

 

 

*** No one on this site is providing medical advice.  We are just offering comments on what has worked in our own lives ***

living our best life possible – alternative medicine

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Welcome back my friends!  Thank you so very much for joining me again for our next question on living our best life possible.

The question this week is………what alternative medical treatment(s) or recommendations, if any, have given you positive results?

A traditional medical path has, up to this point, provided minimal relief from any of my chronic illnesses.  As a result, I have sought out more non-traditional and alternative medical professionals through this very long and winding path towards (hopefully) healing.  But, do to the high cost of alternative medicine, there are many paths that I have yet to explore – but hope to some day.

I have experienced benefits from various supplements, following a grain-free diet, meditation, walking when able, and seeing a medical massage therapist once on month to help with muscle and joint pain.

How about you?  Please share your experiences!

 

~ Please note – no one on here is providing medical advice, we are only sharing personal experiences that have helped us on our journey.

living our best live possible – bad days

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This post is going to be different then what I have been posting recently, which has been my attempt at writing poetry.  I have enjoyed putting the words on the screen and deeply appreciate all the kind comments, deserved or not 🙂  so thank YOU!

This week I have been really struggling to come up with something to write.  This struggle caused me to reflect on why I started this blog in the first place.  My main purpose was to help others, who like myself, live with dreaded chronic illnesses.  When I began writing almost 2 years ago, I was so gung-ho, but the more I blogged and the more blogs I read, I became extremely intimiated by the high quality of writing and the vast amount of knowledge that so many others had, that I shyed away from my original intent.

So I decided that, at least for the near future, I will be asking those who grace me with your presence, to answer a different question each week, with each one relating to living our best life while chronically ill.

First, let me give Kim over at  I Tripped Over a Stone a HUGE shout out as she has inspired me to start asking questions.  Every week this amazingly beautiful soul asks her readers questions and the enjoyment I have received from answering and reading others responses has been surprising.  I encourage those of you who have not visited her site to please do so, thank you.

I realize that all of us suffer from different illnesses, affecting us in different ways.  But over the last 21 months I have come to realize that we share a lot more in common than not and we have so much to learn from each other.

So, without further ado, here is the first question:  How do you handle your very bad days?

For me, this is a tough one.  I have 4 kiddos at home and our situation is unique and one that I do not talk about as to protect the identity of my children.  But, even on my really bad days, more than likely I have to get out of bed.  So, I will drink some extra water, maybe be get into a hot shower, put on some loose comfortable clothing, try to drink a smoothie and take my supplements, and then pray for the best.  If I don’t have to get out of bed, I don’t, and I put on a movie, listen to an audiobook, YouTube, anything that does not require reading.

So, how about you guys?  How do you handle your bad days?  The more suggestions the better, you just never know who you may help.

 

lonely road

 

bare trees at golden hour

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no one can truly understand the pain and discomfort of  living

to understand the masks put on every day, to live within the confines of  this society, not to be viewed as worthless, useless, in a culture that wants fast paced living, quick movements, immediate answers, a fountain of youth, boundless energy, radiating health………..

we struggle to even maneuver down this path……….it is twisting, turning sharply with multiple bumps in the road

it’s a lonely road we roam…………..the desperation, the clinging onto hope, the desire to feel normal……………it is astounding thoughts of healing we try to keep alive – pushed to the back of our minds so not to be overwhelmed with the thoughts of what might be.

the road is endless and uncharted.  it is an intimidating place to ramble as the fog covers the path – your view is obscured…………you have no ability to see where you are going.

it’s like taking a trip, to an unknown place without any clue to where you are going or how you are going to get there…………..not a path I would have chosen to take, but one I am on nonetheless.

unsolicited advice

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I always carry a small notebook and pen with me wherever I go.  I do this for two main reasons;  one, I like to be able to jot down ideas or thoughts on paper that pop into my head before they fade into the abyss, and two, to pass along my info to someone who is giving me unsolicited advice.

Let me explain…..

I have been dealing with chronic illness for y-e-a-r-s, so I have heard a lot of remedies for my ailments. In fact, as I was typing this post I remembered even more unwanted advice and added those to a previous post.

So, I now deal with unwanted medical advice in a very simple way.  I politely thank the individual for caring so much about me that s/he wants to help.  I explain to them that I have a difficult time retaining new auditory information (which is true) and I would love to read more about their cure.  I take out my notebook and I write down either my email or physical address (which ever seems more appropriate for the situation) and tell them I look forward to hearing from them.

You can probably guess the rest………..I have NEVER once been sent any information through the mail, and who doesn’t love receiving mail?!  I have received two or three  emails over the years and they did contain some valid health information.  Now if I could only find a way to stop them from offering advice in the first place!

Until next time………

 

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bedside table

bed bedroom blanket clean

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You are probably thinking, why on Earth would you write about a bedside table?  Well, it came to me yesterday as I was tidying up my side of the bedroom and trying to fit all my “necessities” on the little table next to my side of the bed.  It was at that moment I realized that a functional bedside table is a necessity for everyone with CI.  How could I not have thought about this before?  My goodness, I have always had trouble trying to fit everything onto that tiny surface.

I know everyone with CI will have a different list of what is important for him/her to have next to the bed, but I have always had a pretty consistent list of must haves:  journals, a devotional, a lamp, lotion, lip balm, tissues, bottle of water, a supplement or three, my current read and note cards and pens for making lists/taking notes/writing a card to a friend/family member.  And all of that stuff takes up a lot of space.

There is little that is more frustrating than feeling terrible and needing something from the table, and as you reach for it, it and maybe several other things fall to the floor because the table is so crowded with guests.  As for me, it usually stays there with the hopes that it really wasn’t that important.

At the moment my table is just that, a small plant stand.  It is a nice one, solid wood, Amish-made, sturdy, but oh my goodness, it is small and only has the one surface.  So, I have made it my mission to find something else within the house to use as a gathering place for my goodies.  My dream is to purchase something out of the IKEA catalog but that isn’t going to happen anytime soon, but hey, those of us with CI are all very good at making due.  We live a make due life day-in and day-out.

So, here are to things that make our lives just a bit easier, no matter how insignificant it may seem to others.

 

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