living our best life – today

turned on enjoy today neon signage

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With all the stressful things going on around the world, it takes a huge toll on our minds and therefore our bodies.  Those of us who live with chronic illnesses have very legitimate reasons to be concerned.  But instead on dwelling on the scary, we are going to focus on one postive thing we can do today to bring about contentment, joy, relaxation, or any feeling that is the opposite from the ball of stress you may have rolling around inside you.

So, my question for today is, “What is one thing you can do this very day to allow yourself to feel at ease in the world, even for a little while?”

 

~ I am praying for every single one of you beautifully amazing people, now go be amazing, even if it is from the four walls of your room.  

“Peace is always beautiful.” —Walt Whitman

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living our best life – worry

 

photo of man with hand on his head in the dark

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Worrying is such a awfully powerful emotion.  Many of us within the chronic illness community live daily with a heap of things to worry about.  Our health, our finances, our family’s health, a new symptom, our new normal, fear of losing more, the state of the world, decisions on treatments, how to manage all that is required of us, and on many days, how and the heck we are just going to make it until we get to go to bed again.

It sucks.  It is not good for our bodies, minds or souls to experience continuous worry and anxiety with only brief moments of quiet and calm.  Even if you do not live with constant worry, it has a ability to sneek up on you when you least expect it.  You may be living in the moment, consumed with what appears to be happy thoughts and BOOM, you are hit so intensely that you feel as it any moment the anxiety is literally going to take over every cell in your body and bring you to your knees.

I know we all strive to live a worry free life, to be set free from our own thoughts, to be able to live outside of our deeply wired beliefs and messages.  It’s hard, especially if you have been living this way for a long time.

So my question for you this week is, “What do you do to refocus your thoughts toward peaceful and calming energy, and removing worry from your mind?”

 

*This post, nor comments within the post, should be taken as medical advice.  We are just people providing suggestions to help each other live our best life possible.    

living our best life possible – JUST SAY IT!

black microphone

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Through all the years I have lived with chronic illnesses, I have felt the pressure to say that I was ok, even when I absolutely was not.  These pressures may have come from my internal desire to be well, not wanting to admit that I was sick, or living, if only briefly, in a fantasy world of being normal.  Or it could be a result of societal pressures, of people not wanting to know the truth of illness, or hear about others’ problems because it is way more fun to listen to happy stories.  Maybe it was because I heard, “you don’t look sick” one too many times.  Maybe I was tired to hearing people tell me how so-and-so was cured from some new thing.  I am guessing it is a combination of reasons.

I have always felt looked down upon when I spoke the truth.  That I was being judged for being ill, that somehow it was my fault, and that I was not working hard enough at healing.  Whether or not this was true, it was how I felt, so it was my reality.

There are days I want to open my back door, step outside and scream, “This sucks ass!”  Yep, I just swore, trust me, God can handle my truth, even if others can’t.  Who am I expecting to hear this?  My chickens?  My neighbors?  No, just every single person I have ever lied to when I said I was ok.

So, is there something you have always wanted to say about your illness, but have been too afraid?  Something you have wanted to scream to the world, yourself, or others?  NO JUDGEMENT HERE!

Sometimes is takes us being very, very honest with ourselves and others before we can even have a snowball’s chance in hell to begin the very long road to healing. 

 

To Those Who Care For Others…..

love romantic bath candlelight

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On the day that many associate with love, I would like to send a HUGE thank you to those of you who help care for others.  Chronic illness puts an enormous strain on relationships and too many people who are stricken are eventually abandoned to continue their fight on their own.  When I read about situations like these, it literally breaks my heart.  No one ever wants to rely on someone else to take care of them, but life has a way of putting us in situations that we do not deserve or desire.

So to all you caregivers out there, Thank You again for giving of yourself so unshelfishly, for staying, for loving, for listening, for assisting, for praying, for loving and for encouraging healing.  You have no idea what a huge blessing you are for those of us lucky enough to have you in our lives.

Te quiero me amor!  

Calling authors who live with a chronic illness!

black twist pen on notebook

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One of my 2020 goals for simplychornicallyill is to review 6 books from WordPress bloggers who live with a chronic illness (or three).   Currently, I have two publications on my to-review list,  but I am searching for three more books to read this year.  My first review of 2020 was The Shadow Boxers by Kim Johnson & Karen Anderson and you can find my thoughts here.

So, if you are a chronically ill  and have published a book, or know of a WP blogger who is chronically ill, please send them a link to this post.  All I need is the title of your book and I will purchase it with my own funds, give you a review on this blog, and hopefully help bring more attention to your work.

Thank you in advance for the chance to assist another chronically ill author.

 

` wendi is author of 3 books and you can check them out here.

The Shadow Boxers – a book review

photo of woman in boxing gloves

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I am super excited to kick off my 2020 book review series with, The Shadow Boxers – Fighting Fibromyalgia – Your Personal Journey by Kim Johnson & Karen Anderson.  My goal is to review 6 books, all written by individuals living with chronic illness(es).  If you are an writer and would like me to review your book, at my cost, please send me a message.

The Shadow Boxers was purchased from Amazon using personal funds and the review is completely my own.

 

My initial impression of the book is that I really liked the size.  It is not too big or small and fit in my hands perfectly.  This may seem like an unusual observation but I have purchased books that were just too small for my hands to hold easily and therefore caused pain or too big and akward to hold, again causing discomfort.  The print is also a good size, making the words easy to read.  Another bonus is the colors on the cover of the book are easy on the eyes creating another asthetic win.

Shadow Boxers covers all the basics of fibromyalgia, which I have to admit, although I thought I knew a lot about the illness, I still learned quite a bit.  The authors’ used not only their stories, but stories of others, allowing us to take a peek into the life of those who live with  fibromyalgia and how the illness can affect people in different ways.

But what I loved most about this book is that it is for you to write in.   You are an active part of the book, the main character, and with that honor it is imperative that you do your part.   Each chapter is followed by a one sentence prompt and it is a place for you to express your own thoughts and feelings, with enough space to write a rather lengthy commentary.

Although I did not write in the book, I did use the prompts to express my own thoughts and I found what I wrote to be quite insightful, I just substituted fibromyalgia for the main illness that I deal with.  Active participation is a MUST to get the most out of this book……..it is meant to be written in, to explore your own feelings, to express your frustrations and your inner most thoughts.  Once you have made your way through the book, it would be like having a productive counseling session and a whole lot cheaper.

Kim can be found blogging at I Tripped Over a Stone and I highly recommend you check her out………she is an amazing human being and force to be reckoned with!

 

books by chronically ill writers

eyeglasses on opened book beside cup of coffee on table

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With 2020 just around the corner, I have been thinking about blog posts for next year.  One of my goals, besides keeping the Living Our Best Life weekly questions, is to review at least 6 books that are written by an author who is chronically ill.

Not only do I know what it is like to live with multiple chronic illnesses, I also know how much work goes into writing and self-publishing a book and the enormous amount of effort it takes to promote your publications.  So next year I would like to help out my  fellow spoonies and promote their work.

If you would like me to do a review of your book, that I will purchase, please leave me a message in the comment section.  The book does not have to be about  illness, but the author must live with at least one chronic ailment.

I look forward to reading your work!

 

~ wendi is the author of 3 books that you can view here  and all her books can be read FREE with KindleUnlimited

living our best life – holiday movies

photo of string lights

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A warm hello to you today, thank you for stopping by for a visit.

In this post I am asking a question for more personal reasons.  Due to my multiple chronic illnesses, I unfortunately spend a lot of time watching movies.  Even if I am not actually watching movies, I have them playing in the background as I go about my day as I use them as a distraction.

So my question is, What is your favorite holiday movie?  

Thank you for responding, I am hoping to discover one movie that I have not yet seen!

Thanks again for stopping by.  Please know that each one of you are in my thoughts and I have prayed that today is treating you well and bringing you smiles.

 

living our best life possible – book give-away

pile of books

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( this is not a photo of the actual book )

 

In the spirit of Christmas and as a huge thank you to all of you who have blessed this little blog with such great comments in my “best life possible” series, I am giving away my copy of The Power of Illness To Change Your Life by Kavi Jezzie Hackaday who blogs here on WP at Live a Holistic Life

Although he does not blog often, when he does, his posts are full of wonderfully helpful health filled content.

I purchased Kavi’s book through Amazon, and I did not want to put it down, finishing it in two days.  This is a major feat for me as I am a very slow reader.  I found it easy to read and understand, with it being part autobiographical and part how he healed his autoimmune disease that he was told was incurrable.

Please leave a comment if you would like to have an opportunity to win my USED (very used) copy.  I am so very sorry, but this is only available for those in the US due to shipping costs.

The winner will be drawn December 10th, 2019 from names of those who leave a comment, by one of my children.  I will contact you immediately for your shipping address and the book will be shipped via USPS media mail.

Happy Learning!

 

 

~ wendi is the author of three books focusing on how to save money.  You can check them out here.  Thank you.

living our best life – in the kitchen

yellow kitchenaid stand mixer

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As we are spending a little more time in the kitchen or thinking of holiday foods that we enjoy, I decided to write about the object in my kitchen that make my life easier.

I have to admit that I do not find much enjoyment from cooking.  I am thankful that on my good days I am able to feed my family healthy, mostly well balanced meals, but the smells and bending over and reaching makes me feel worse.  Even though I keep all of my frequently used items on the counters, I still feel poorly after preparing food.

To help me get through the whole, preparing a meal ordeal, I daily use my favorite kitchen appliance, putting it to good use.  It is my combination DVD/CD/radio that hangs under a kitchen cabinet next to the sink.  I received this from my parents who were getting rid of it and it has been one of my favorite gifts ever!

I turn it on every single time I am in the kitchen for more than a couple minutes.  I usually have a DVD playing as it does a wonderful job distracting me from pain and discomfort allowing me to stay in the kitchen longer.  Today there is a stack of my favorite Christmas DVDs waiting to be watched over the next month.

So, what about you?  What is your favorite kitchen appliance and how does it make your life easier?  

Thank you for taking the time to share!