living our best life – physical activity

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Welcome friends and thank you very much for stopping by today.  This week my question has to do with physical acitivity.  This is a tough area for many people with chronic illness since there are some that respond poorly to exercise.  No matter what  illness label you hold, fatigue is always a side effect making exercise something that takes a lot will power to overcome the desire to climb back into bed.

We read, watch, and are told that exercise is an important part of a healthy lifestyle which can lead to guilt and disappointment when we cannot participate in the physical activities that we were once able to enjoy.

So, this week’s question is, What physical movement do you participate in? 

Over the years I have been able to do as little as, yay! I walked up and down the stairs today or to the mailbox.  Currently I am able to take my dog on a short walk, walk in the park, get on the treadmill or exercise bike but have discovered that 30 minutes is about my limit or I pay for it the next day.

Please take a moment to share what works for you.  I am sure many of us are looking for new ways to move our bodies.  Thank you!

 

  • We are not providing any medical advice, only ideas of what works for us.

living our best live possible – bad days

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This post is going to be different then what I have been posting recently, which has been my attempt at writing poetry.  I have enjoyed putting the words on the screen and deeply appreciate all the kind comments, deserved or not 🙂  so thank YOU!

This week I have been really struggling to come up with something to write.  This struggle caused me to reflect on why I started this blog in the first place.  My main purpose was to help others, who like myself, live with dreaded chronic illnesses.  When I began writing almost 2 years ago, I was so gung-ho, but the more I blogged and the more blogs I read, I became extremely intimiated by the high quality of writing and the vast amount of knowledge that so many others had, that I shyed away from my original intent.

So I decided that, at least for the near future, I will be asking those who grace me with your presence, to answer a different question each week, with each one relating to living our best life while chronically ill.

First, let me give Kim over at  I Tripped Over a Stone a HUGE shout out as she has inspired me to start asking questions.  Every week this amazingly beautiful soul asks her readers questions and the enjoyment I have received from answering and reading others responses has been surprising.  I encourage those of you who have not visited her site to please do so, thank you.

I realize that all of us suffer from different illnesses, affecting us in different ways.  But over the last 21 months I have come to realize that we share a lot more in common than not and we have so much to learn from each other.

So, without further ado, here is the first question:  How do you handle your very bad days?

For me, this is a tough one.  I have 4 kiddos at home and our situation is unique and one that I do not talk about as to protect the identity of my children.  But, even on my really bad days, more than likely I have to get out of bed.  So, I will drink some extra water, maybe be get into a hot shower, put on some loose comfortable clothing, try to drink a smoothie and take my supplements, and then pray for the best.  If I don’t have to get out of bed, I don’t, and I put on a movie, listen to an audiobook, YouTube, anything that does not require reading.

So, how about you guys?  How do you handle your bad days?  The more suggestions the better, you just never know who you may help.

 

flicker

lighted candle

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pitch darkness is a space where you are forced to discover what you are truly made of and how you were created

veils fall off those who surround you, and their souls reveil as they truly are

terror strikes in isolating darkness,  not knowing what or who is around the next corner,  taking each step with a movement of faith, yet questioning where your faith lies

only in true darkness can you see flickers of light, from yourself, or from others in your life

allow that flickering of light, no matter how weak, illuminate your path

you were not meant for the dark, yet only by trudging through the darkness can you truly appreciate the light.

at sunset

 

 

silhouette of clouds during golden hour photograph

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watching the sun fade into the landscape, it leaves my world dark and still,

it is in these moments that my mind starts to question all that I think to be true

it is a time when I begin to rewrite my own story….

as the dawn arrives, I face a brand new day………and I pray,

maybe today I can make it different

 

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rain

water dew photography

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a late summer storm

the rain pours down from the gray sky

drenching the soil surrounding me……

yet I stand in the middle of the storm, untouched

no refreshing rain reaches me,

will I ever feel its refreshing quench?

 

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forest

bright countryside dawn daylight

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searching a dense forest,

no sunlight can reach me,

its vastness surrounds me and I cannot find my way,

I whisper his name…..

and all I can hear is my own voice calling back to me…….saying

……..where are you?

 

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~ wendi is the author of two books, you can view them here.

isolation

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Synonym Discussion of isolation

solitudeisolationseclusion mean the state of one who is alone. solitude may imply a condition of being apart from all human beings or of being cut off by wish or circumstances from one’s usual associates.

    • a few quiet hours of solitude

isolation stresses detachment from others often involuntarily.

    • the isolation of the village in winter

seclusion suggests a shutting away or keeping apart from others often connoting deliberate withdrawal from the world or retirement to a quiet life.

    • lived in pastoral seclusion

 

ISOLATION this is such a sad and lonely word, just pushing the sounds across your tongue sounds just……….blah.

ISOLATION is what the prison system uses to further punish those who misbehave while behind bars.  It is meant to break people so they never want to do another bad thing.

Many individuals with chronic illness are living isolated lives.  Isolation leads to even more unwanted side effects or exaggeration of current symptoms such as depression, anxiety, worry, loneliness and pain.

No one wants to feel lonely and too many people are scared to admit they feel alone because, simply put, in today’s world, it equals loser, or worse yet, unlovable.  Obviously this is not true, but those feelings are there none-the-less.

Being chronically ill, we have already lost so much……..previous abilities to do what we loved, stamina, a good night sleep, to interact with our surrounding in a immediate and prompt way……adding loneliness into the mix is a huge slap in the face, fuel to the fire.

This world (at least here in the US) is fixated on the health, youth, independence, wealth, and “beauty” at all costs and people do not take time to slow down and go and visit a friend who is ill, let alone even know who their neighbors are…………so what can we do about this?

…….PLEASE, if you know someone in your neck of the woods who is alone, sick, lonely, can’t get out and interact with the world on a regular basis, please take 1 hour out of  the next 30 days and do something about it.  This simple act of kindness, multiplied by many, sends love where it needs to be, with those who can use it the most.  If you are personally unable to get out of your home, send a card or a letter to someone else who is in a similar situation.  Emails are nice and texts can be great too, but taking the time to send a personal note shows you took an extra step out of your day and thought of them in a very real way.  Now please go……………

 

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Image result for quotes of gandhi to be the change you want to see in the world

~ wendi is the author of two books, you can view them here.

Get To Know Me Tag

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get to know me

Thank you so very much Ana from momlifewithchiari for this tag, I am thrilled to be picked by such a dear person that I have come to call friend……and not just because we share a disorder.  Please take a moment to go check out her blog.

Rules:

  1. Thank the Person Who Nominated You
  2. Provide a Link to their Website
  3. Answer the “Get To Know Me” Questions
  4. Nominate 10-15 Bloggers.
  5. Pass on the Same 10 Questions ( With an additional of 2 of yours, if you wish )

The Questions:

1. What does your name mean?

I have always wanted a story to go along with my name, but alas, there is none.  I am not named after anyone or any character, I guess my mom just liked the name and wanted it to be different from the original spelling and replaced the Y with an I.

But, according to the Urban Dictionary, Wendi means friend……….I’ll take that.

2. Are you scared of heights?

Oh my goodness, Yes!

3. What is your best physical feature?

I can smile through most pain and discomfort.

4. What is your favorite Music Genre?

I enjoy most types of music……..classical, 60s-present day, Indie, folk, ethnic, bluegrass, rock, and some heavy metal.

5. Are you a good cook?

I really can’t answer this question as cooking is something that I have never enjoyed doing……….my last post may give you a glimpse into whether or not you would think I am a good cook.

6. What is your favorite Ice-cream flavor?

Sugar is something that I work very hard at staying away from, but, if I had to pick one I would choose So Delicious dairy-free, coconut milk chocolate frozen dessert.

7. Do you have any allergies?

Yes,  lots of them.  Mostly foods and mold.

8. What is your favorite festival?

Pow-Wows.  To find a Pow Wow taking place in your area click this link.

9. Which of your parents do you look like?

Great question, probably a combination of both with some grandparents’ features thrown in.

10. Who is your favorite Musician?

Robert Mirabal

My Nominees:

I would LOVE anyone who took the time to read this post to do this tag.  If you choose this “challenge” I will be thrilled to put your link below……..just let me know and I will add it.  Thank you so much!

Jeanne in the Kitchen

what if?

woman dark eye spooky

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what if there was no sadness?

what if there was no pain?

what if there was no sorrow?

what if there was no illness?

what if there were no struggles?

what if there was no evil?

what if there was no hunger?

 

what would all of that mean?

 

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