living our best life – change

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Change, such a small word with so many connotations, and a word that those of us with chronic illness can relate to on many levels.  Yes, change is a part of life no matter who you are, and lately all of us have been going through at least some minimal changes in our daily lives.

 

My question for you this week is, “What is one way that your life has changed since the pandemic started and has this change had a positive or negative impact on your living situation?”

 

~ Thank you so very much for taking the time to stop by and and respond to this week’s question.  Please know that I am praying for all of you and I wish the very best for each and every one of you.  

living our best life – audio blessings

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There are many of us who are blessed to find ourselves with extra time on our hands.  So, my question for this week is, “What is a favorite audiobook, YouTube channel or podcast that you have been enjoying listening to and what makes it so special?”

` Thank you for taking the time to respond!  Wishing each of you health, safety, and blessings beyond your wildest imaginations.  

Would you like a letter?

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As many of us around the world are in isolation, it feels very surreal to me.  Even though I spend more time at home then most people, it still feels odd not to be able to freely move around my little neck-of-the-woods when I am able.

Thank goodness for the ability to connect with others through our beloved wifi.  It is such a blessing to still feel close to those we are not able to spend time with.

But, I have to admit, I have always enjoyed receiving a real letter in the mail.  There is something special knowing that someone took the time and energy to sit down and write out a note just for you.

So, if you feel this way too, please let me know.  I would be thrilled to send you a letter, even if you live on the other side of the world.  I don’t want people feeling isolated from real contact.  I know a letter is not real contact but I feel it is a bit more personal than a text or a response on a post.

Please do NOT leave your address in the comment section but instead send me a message through my contact page.  If you do not hear back from me in 48 hours, I did not receive you message and please try again.

Please know I care about each and everyone of you.

the storm

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i stand outside as the storm begins to rage

the thunder rolls in sending animals scattering,

yet i don’t move,

lightening strikes,

shaking the earth under my feet,

my body quakes with fear as the world around me appears to shatter into pieces,

strikes hits too close leaving me cowering in a heap,

 

can i within stand the storm,

can i endure the constant barrage of raging winds and ravishing rains that beat at my body……..

no place to run,

no place to hide,

not only from the storm but from myself.

i am soaked to the bone,

cold to the touch,

immense fear engulfs my mind

is shelter worth searching for,

my soul cries out for comfort,

yet, do i need saving?

 

 

~ wendi is the author of two books, you can view them here.

Unauthorised use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. 

 

 

 

 

isolation

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Synonym Discussion of isolation

solitudeisolationseclusion mean the state of one who is alone. solitude may imply a condition of being apart from all human beings or of being cut off by wish or circumstances from one’s usual associates.

    • a few quiet hours of solitude

isolation stresses detachment from others often involuntarily.

    • the isolation of the village in winter

seclusion suggests a shutting away or keeping apart from others often connoting deliberate withdrawal from the world or retirement to a quiet life.

    • lived in pastoral seclusion

 

ISOLATION this is such a sad and lonely word, just pushing the sounds across your tongue sounds just……….blah.

ISOLATION is what the prison system uses to further punish those who misbehave while behind bars.  It is meant to break people so they never want to do another bad thing.

Many individuals with chronic illness are living isolated lives.  Isolation leads to even more unwanted side effects or exaggeration of current symptoms such as depression, anxiety, worry, loneliness and pain.

No one wants to feel lonely and too many people are scared to admit they feel alone because, simply put, in today’s world, it equals loser, or worse yet, unlovable.  Obviously this is not true, but those feelings are there none-the-less.

Being chronically ill, we have already lost so much……..previous abilities to do what we loved, stamina, a good night sleep, to interact with our surrounding in a immediate and prompt way……adding loneliness into the mix is a huge slap in the face, fuel to the fire.

This world (at least here in the US) is fixated on the health, youth, independence, wealth, and “beauty” at all costs and people do not take time to slow down and go and visit a friend who is ill, let alone even know who their neighbors are…………so what can we do about this?

…….PLEASE, if you know someone in your neck of the woods who is alone, sick, lonely, can’t get out and interact with the world on a regular basis, please take 1 hour out of  the next 30 days and do something about it.  This simple act of kindness, multiplied by many, sends love where it needs to be, with those who can use it the most.  If you are personally unable to get out of your home, send a card or a letter to someone else who is in a similar situation.  Emails are nice and texts can be great too, but taking the time to send a personal note shows you took an extra step out of your day and thought of them in a very real way.  Now please go……………

 

Unauthorised use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. 

Image result for quotes of gandhi to be the change you want to see in the world

~ wendi is the author of two books, you can view them here.

What are you binge watching?

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Those of us with CI tend to spend a lot of time with media including TV, Netflix, YouTube, Amazon Prime, audio-books, books, radio, DVDs, CDs and playaways.   Recently I started writing down all of the shows that I have binged watched over the years due to the vast amounts of time I have spent in bed.  I have to admit it made me sad as very little of the binge watching was by choice.  I would much rather have been outside hiking or playing ball with my kiddos but unfortunately there have been way too many bad days/weeks to engage in the activities of my choosing.

Below is a list of each show I have binge watched from beginning to end, in no particular order.  After each show, I listed in which form it was watched and then in parenthesis I included if it is currently available in another form.

I do want to put in my 2 cents worth here; I believe that purchasing a NETFLIX account has been a huge blessing for me, no late DVD return fees and it is available 24/7 for those nights you just can’t sleep, not to mention it can be watched on multiple devices.

We also have an Amazon Prime membership as many of the supplements that I take are cheaper to purchase through them and the items are delivered right to my door.  Their video and music streaming are additional awesome prime membership benefits.

Many of the shows  listed below were watched on DVD.  The majority of the DVDs were checked out from my local library and a few were gifts.

So, here we go in no particular order:

The Office – DVD (Netflix)

The Walking Dead – Netflix

Sneaky Pete – Amazon Prime

The Man in the High Castle – Amazon Prime

The Waltons – DVD (Amazon Prime)

When Calls the Heart – Netflix

Stranger Things – Netflix

Downton Abbey – PBS (Amazon Prime)

Poldark – PBS (Amazon Prime)

As Time Goes By – DVD

Good Neighbors (The Good Life) – DVD

Home Fires – Amazon Prime

Pride and Prejudice – DVD (Amazon Prime)

Emma – DVD (Amazon Prime)

Lark Rise to Candleford – DVD (Amazon Prime)

Butterflies BBC – DVD

Rosemary & Thyme BBC – DVD

Behaving Badly BBC – DVD

A Fine Romance BBC – DVD

Homicide Life on the Street – DVD

Cranford – DVD (Amazon Prime)

The Middle – DVD and ABC.go.com

Everybody Hates Chris – DVD

To The Manor Born – DVD

Breaking Bad – DVD (Netflix)

Better Call Saul – DVD and Netflix

Sense and Sensibility – DVD

Frazier – DVD (Netflix)

Speechless – ABC.go.com

Unbreakable Kimmy Schmidt – Netflix

Cheers – Netflix

Speechless – ABC.go.com

My Family BBC – DVD

Keeping Up Appearances BBC – DVD

Jack Ryan – Amazon Prime

 

So…………what are you binge watching?  (There will be no judging!)

………..Until next time, YOU are a superhero…….even from the comfort of your bed or sofa!

 

Is chronic illness simple?

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Oh my goodness NO!  Actually not just no, but hell NO!  So why in the world would I give this blog such a title?

Before I started this blog, I struggled to give it a name because once you name something it becomes real and reality can be harsh.

It has taken me years and years to accept the fact that I am chronically ill.  Just typing out that sentence makes me sick to my stomach, I don’t want this to be real, not for me and not for you.  I am tired of feeling the need to explain myself regarding why I can’t do certain things, for having to cancel outings at the last minute, for not being able to live my life the way I planned it all out in my head many years ago.  Chronic illness has taken so much away from me and I hate it, I hate the whole stupid thing and I want it to all go away and leave me alone.  Alas, that wan’t to be and I had to suck down a whole bunch of reality and accept the fact that I am simply put, chronically ill.

After I accepted the fact that I am chronically ill, I realized that I  needed to structure my life as simply as possible in the not-so-fun areas of cooking, cleaning, laundry, errands,  finances and the ability to say no, so I just may have enough energy to add some fun things into my life.  Along the way I have learned, many times the hard way, some tips that have helped me save some of that precious energy and I wanted to share it with anyone who is also struggling.  Maybe I can help just one person get a little more out of life and I know all of you have amazing tips to share too.

I know we all feel alone, but in reality there are so many of us who struggle daily with these dreaded chronic illnesses. Just remind yourself that we are not our illnesses, we are warriors and warriors simply change the world.

Until next time……………..YOU are a superhero!