get out of my head

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i don’t want you here, living inside my head

questioning every decision,

every move I make,

putting useless worry into my mind,

creating chaos that cannot be calmed with relaxation or meditation

you want to destroy me

make me feel as if I cannot get better,  heal,  or live a happy life

 

i want to be lifted up

encouraged,

experience true peace,

 

so find a new place to reside

 

i am kicking you out

for good

 

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more of the good

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Like so many other people on this small planet, I take the beginning of a new year to set out goals that I hope to accomplish over the next year.  I have a lot of them, eat healthier, move my body more, spend more time in nature, save more money, pay down debt, read more books, spend more time with God and go on more dates with my husband.  As I was mulling over what it is I would like to accomplish this year, I realized that I really just need to spend more time doing the good stuff and less time doing the bad stuff.  Yep, that about sums it up!

Wishing all of you a very blessed New Year!  May you reach your goals………

 

 

 

~ wendi, under the pen name Charlie, is the author of Frugal Seeds: 501 Ways to Make, Save, or Stretch a Dollar

drums

close up photo of brown instrument with blue sticks

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the drums are beating…………i hear them from afar and they draw me in.

as i walk i try to hide myself from its pull

the beats, like my heart, give life to all that is around it

i creep closer……….the drum is under the open sky

i search for people………no one is there,

the drum is beating on its own

calling out to those who need to hear it, it draws us in……….

people begin encircling the drum from all directions- walking out of the darkness

searching for their own beating heart

 

 

tornado

tornado on body of water during golden hour

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a chronic illness is like a tornado………..it starts with little warning………the right conditions merging together to create a destructive force

it can create mass devastation to everyone and everything in it’s path with no regard to human suffering

it creates mass casualties

it destroys lives in a matter of moments

sends dreams flying through the air with no safe place to land

 

it brings people to their knees, crying………”I lost so much”

lives must be rebuilt

and maybe, just maybe, we will be able to rebuild a good life again, complete with blue skies and sunshine

in your arms

 

person spreading hands against sun

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i feel safe from the world

i feel safe from my fears

this safety allows me to stop my tears

 

i hate feeling scared of what might be

but i am thankful that you are here to calm me

to whisper to me that it will all be ok

that you will, through it all, with me, will stay

free summer meals for kids through 18

cooked fish fillet on plate

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Free lunches, and in some locations breakfast and even dinner, are available FREE to ANY child 18 and under throughout the United States.  Check out the website below to find a location near you.

In our state, most elementary schools and large city parks distribute lunches Monday through Friday.  The below website is good, but many places are probably missing as even our small community has a nonprofit organization, in addition to the government funded summer lunch programs, who also offer free meals for anyone Monday-Friday.

Please know that if you are struggling financially or physically there are places, especially in the summer, to get food.  Please do not be embarrassed to reach out for help.

https://www.fns.usda.gov/summerfoodrocks

If you are looking for some free activities (cheap) for your kids, you may find something in this post.

unsolicited advice

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I always carry a small notebook and pen with me wherever I go.  I do this for two main reasons;  one, I like to be able to jot down ideas or thoughts on paper that pop into my head before they fade into the abyss, and two, to pass along my info to someone who is giving me unsolicited advice.

Let me explain…..

I have been dealing with chronic illness for y-e-a-r-s, so I have heard a lot of remedies for my ailments. In fact, as I was typing this post I remembered even more unwanted advice and added those to a previous post.

So, I now deal with unwanted medical advice in a very simple way.  I politely thank the individual for caring so much about me that s/he wants to help.  I explain to them that I have a difficult time retaining new auditory information (which is true) and I would love to read more about their cure.  I take out my notebook and I write down either my email or physical address (which ever seems more appropriate for the situation) and tell them I look forward to hearing from them.

You can probably guess the rest………..I have NEVER once been sent any information through the mail, and who doesn’t love receiving mail?!  I have received two or three  emails over the years and they did contain some valid health information.  Now if I could only find a way to stop them from offering advice in the first place!

Until next time………

quotes to inspire you to take care of yourself!

 

 

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It is important for everyone to take good care of him/herself.  But for those of us with chronic illnesses, it is vitally important.  Our days can be are filled with pain, discomfort, anxiety, loneliness, sadness, brain fog, confusion, appointments, and the fear of the unknown.  It is a lot for one person to handle and because of this, self-care is something that needs to be high on every CI persons’ list.

Please take a moment to read the quotes below.  It is my hope that they inspire you to make yourself a priority and encourage you to go do something nice for yourself!

 

“Self-care is how you take your power back.”

–  Lalah Delia

 

“Take time to do what makes your soul happy.”

–  Unknown

 

“When the well is dry, we know the worth of water.”

–  Benjamin Franklin

 

“Time you enjoy wasting is not wasted time.”

–  Unknown

 

“Sometimes the most important thing in the whole day is the rest we take between two deep breaths.”

–  Etty Hillesum

 

“If compassion does not include yourself, it is incomplete.”

–  Jack Kornfield

 

“Self-compassion is simply giving the same kindness to ourselves that we would give to others.”

–  Christopher Germer

 

“How do you define taking care of yourself?  Create a new self-care practice today.  Observe your comfort level when it comes to being good to yourself.  Discomfort is a wise teacher.”

–  Caroline Myss & Peter Occhiogrosso

 

“Love yourself enough to set boundaries.  Your time and energy are precious.  You get to choose how to use it.  You teach people how to treat you by deciding what you will and won’t accept.

–  Anna Taylor

 

“A merry heart doeth good like medicine:  but a broken spirit drieth the bones.”

–  KJV Proverbs 17:22

 

“Self-care is not selfish.  You cannot serve from an empty vessel.”

–  Eleanor Brown

 

“Self-love, my liege, is not so vile as sin, as self-neglecting.”

–  William Shakespeare

 

“It’s not selfish to love yourself, take care of yourself, and to make your happiness a priority.  It’s necessary.”

–  Mandy Hale

 

“When we give ourselves compassion, we are opening our hearts in a way that can transform our lives.”

–  Kristin Neff

 

“Self love is asking yourself what you need – everyday – and then making sure you receive it.”

–  Unknown

 

“When I loved myself enough, I began leaving whatever wasn’t healthy.  This meant people, jobs, my own beliefs and habits.”

–  Kim McMillen

 

“When you recover or discover something that nourishes your soul and brings joy, care enough about yourself to make room for it in your life.”

–  Jean Shinoda Bolen

 

“Self-care is how you take your power back.”

–  Lolah Delia

 

“Get rid of the weeds and foster the flowers.”

–  Charlotte Mason

 

Happiness is when what you think, what you say and what you do are in harmony.”

–  Mahatma Gandhi

 

“Happiness is the highest form of health.”

–  Dalai Lama

 

“Self-care is taking care of yourself in a tender, loving way every single day.  Self-care is making sure you get what you need every day to thrive.”

–  Amy Kurtz

 

“You are worth every moment you spend taking care of yourself.”

–  simplywendi

 

Hopefully one of the quotes has inspired you to look for ways to be good to yourself every day!

When I find a saying that speaks to me, I like to write it down on an index card and place it in a location where I will see it often, like at my kitchen window.  Who doesn’t need daily inspiration?

……….Until next time, YOU are a superhero and superheros need to take care great of themselves!

 

 

 

 

 

What are you binge watching?

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Those of us with CI tend to spend a lot of time with media including TV, Netflix, YouTube, Amazon Prime, audio-books, books, radio, DVDs, CDs and playaways.   Recently I started writing down all of the shows that I have binged watched over the years due to the vast amounts of time I have spent in bed.  I have to admit it made me sad as very little of the binge watching was by choice.  I would much rather have been outside hiking or playing ball with my kiddos but unfortunately there have been way too many bad days/weeks to engage in the activities of my choosing.

Below is a list of each show I have binge watched from beginning to end, in no particular order.  After each show, I listed in which form it was watched and then in parenthesis I included if it is currently available in another form.

I do want to put in my 2 cents worth here; I believe that purchasing a NETFLIX account has been a huge blessing for me, no late DVD return fees and it is available 24/7 for those nights you just can’t sleep, not to mention it can be watched on multiple devices.

We also have an Amazon Prime membership as many of the supplements that I take are cheaper to purchase through them and the items are delivered right to my door.  Their video and music streaming are additional awesome prime membership benefits.

Many of the shows  listed below were watched on DVD.  The majority of the DVDs were checked out from my local library and a few were gifts.

So, here we go in no particular order:

The Office – DVD (Netflix)

The Walking Dead – Netflix

Sneaky Pete – Amazon Prime

The Man in the High Castle – Amazon Prime

The Waltons – DVD (Amazon Prime)

When Calls the Heart – Netflix

Stranger Things – Netflix

Downton Abbey – PBS (Amazon Prime)

Poldark – PBS (Amazon Prime)

As Time Goes By – DVD

Good Neighbors (The Good Life) – DVD

Home Fires – Amazon Prime

Pride and Prejudice – DVD (Amazon Prime)

Emma – DVD (Amazon Prime)

Lark Rise to Candleford – DVD (Amazon Prime)

Butterflies BBC – DVD

Rosemary & Thyme BBC – DVD

Behaving Badly BBC – DVD

A Fine Romance BBC – DVD

Homicide Life on the Street – DVD

Cranford – DVD (Amazon Prime)

The Middle – DVD and ABC.go.com

Everybody Hates Chris – DVD

To The Manor Born – DVD

Breaking Bad – DVD (Netflix)

Better Call Saul – DVD and Netflix

Sense and Sensibility – DVD

Frazier – DVD (Netflix)

Speechless – ABC.go.com

Unbreakable Kimmy Schmidt – Netflix

Cheers – Netflix

Speechless – ABC.go.com

My Family BBC – DVD

Keeping Up Appearances BBC – DVD

Jack Ryan – Amazon Prime

 

So…………what are you binge watching?  (There will be no judging!)

………..Until next time, YOU are a superhero…….even from the comfort of your bed or sofa!

 

Laundry, one load at a time…..

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Chores …….we all have to do them and there never seems to be an end to what should be done.  To top it off, they are really not all that much fun to do.   Being endless, chores can become overwhelming for those of us with CI, resulting in depression and anxiety.  We get depressed looking at the endless chores left undone because we are too ill or lack the physical energy it takes to complete them.  Tasks get pushed further and further down on “the list” which creates anxiety with all that is left to do.

So, how to tackle the chores that are the musts:  laundry, dishes, groceries and meal preparation, and make them as easy as possible?  I am by no means an expert at home management, but I have had a lot of experience living with CI and having a home to take care of.  It is a ton of work and I made a lot of mistakes along the way.  With every mistake, I searched for ways that would make each chore one I could physically manage.

So this post will touch briefly on laundry.  No matter how many times we are able to wear those not-so-dirty pjs (or fill-in the blank), they will eventually need to be washed.  If you have other people in your household, their clothing and bedding will need to be washed too, adding to the chore load.  I have tried various ways to tackle the endless mounds of laundry;  everybody has a different laundry day………..a BIG nope!  Even when the kiddos were old enough to do their own laundry, if I didn’t feel well enough to supervise, things didn’t proceed as it should.  Laundry got backed up and the room became way too crowded for my liking.

Then I went to doing all the laundry in one day.  Neither me nor the dryer could keep up.  I learned quickly, if I felt well enough to do laundry for 10 hours……….I sure as hell didn’t want to spend my day doing that!

Now, I have no system other than I try to do one load of laundry a day.  That is it.  Everyone is responsible for telling me when they need to do laundry and IF the washer is open, the answer is yes.  I no longer allow loads of dirty laundry to sit in the laundry room.  The room is small and the passage to and from the garage so the clothing can be a tripping hazard not to mention a source of anxiety to be looking at room full of dirty clothes.

So, one load a day from washing to hanging up (I hang up most of our laundry to save it from wear and tear of the dryer and have our clothing last longer) but what comes out of the dryer is folded and then put away by the owners.  If I am having a decent day, I may be able to do two!

If laundry is your responsibility, how do you handle the loads?

……………….Until next time, you are a superhero!