living our best live possible – bad days

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This post is going to be different then what I have been posting recently, which has been my attempt at writing poetry.  I have enjoyed putting the words on the screen and deeply appreciate all the kind comments, deserved or not 🙂  so thank YOU!

This week I have been really struggling to come up with something to write.  This struggle caused me to reflect on why I started this blog in the first place.  My main purpose was to help others, who like myself, live with dreaded chronic illnesses.  When I began writing almost 2 years ago, I was so gung-ho, but the more I blogged and the more blogs I read, I became extremely intimiated by the high quality of writing and the vast amount of knowledge that so many others had, that I shyed away from my original intent.

So I decided that, at least for the near future, I will be asking those who grace me with your presence, to answer a different question each week, with each one relating to living our best life while chronically ill.

First, let me give Kim over at  I Tripped Over a Stone a HUGE shout out as she has inspired me to start asking questions.  Every week this amazingly beautiful soul asks her readers questions and the enjoyment I have received from answering and reading others responses has been surprising.  I encourage those of you who have not visited her site to please do so, thank you.

I realize that all of us suffer from different illnesses, affecting us in different ways.  But over the last 21 months I have come to realize that we share a lot more in common than not and we have so much to learn from each other.

So, without further ado, here is the first question:  How do you handle your very bad days?

For me, this is a tough one.  I have 4 kiddos at home and our situation is unique and one that I do not talk about as to protect the identity of my children.  But, even on my really bad days, more than likely I have to get out of bed.  So, I will drink some extra water, maybe be get into a hot shower, put on some loose comfortable clothing, try to drink a smoothie and take my supplements, and then pray for the best.  If I don’t have to get out of bed, I don’t, and I put on a movie, listen to an audiobook, YouTube, anything that does not require reading.

So, how about you guys?  How do you handle your bad days?  The more suggestions the better, you just never know who you may help.

 

frugal seeds

 

 

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The title of my blog gives away the fact that I live with at least one chronic illness.  Now, I don’t want to brag, but I actually live with several, and as interesting as it sounds, it is not a whole lot of fun.  Unfortunately I am not the only one in my family who lives with such a burden.  Every person in my immediate family lives with at least one chronic illness.

As a result of all of our medical bills, we have learned to live on a tight budget.  Over the years I have had to learn to be frugal and about 6 months ago I decided to put some of  my frugal ways into a book,  Frugal Seeds: 501 Ways to Make, Save or Stretch a Dollar.  It is now available in both paperback and e-book on Amazon.  The entire book can be read for FREE with an Amazon Kindle Unlimited membership.

You will notice it is written under a pen name.  This has been done as I working on additional books and I am determined to keep the lives of my children private.  Thank you for understanding.

 

 

unsolicited advice

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I always carry a small notebook and pen with me wherever I go.  I do this for two main reasons;  one, I like to be able to jot down ideas or thoughts on paper that pop into my head before they fade into the abyss, and two, to pass along my info to someone who is giving me unsolicited advice.

Let me explain…..

I have been dealing with chronic illness for y-e-a-r-s, so I have heard a lot of remedies for my ailments. In fact, as I was typing this post I remembered even more unwanted advice and added those to a previous post.

So, I now deal with unwanted medical advice in a very simple way.  I politely thank the individual for caring so much about me that s/he wants to help.  I explain to them that I have a difficult time retaining new auditory information (which is true) and I would love to read more about their cure.  I take out my notebook and I write down either my email or physical address (which ever seems more appropriate for the situation) and tell them I look forward to hearing from them.

You can probably guess the rest………..I have NEVER once been sent any information through the mail, and who doesn’t love receiving mail?!  I have received two or three  emails over the years and they did contain some valid health information.  Now if I could only find a way to stop them from offering advice in the first place!

Until next time………

 

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the stupid(est) advice people have given me

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I have heard, just like all of you, a lot of really dumb and sometimes hurtful things through my years of chronic illnesses.  I am going to share the medical suggestions that I  can remember, but I should have kept a running list, it would have filled volumes.

 

You are going to stop having children because you are ill?  That is biblically wrong, you should have as many as you are given.

You are going to have surgery to correct a congenital issue?  You need to try these drops first; my friend sells them, they are all-natural, and cured her from food allergies.

You are not praying hard enough to be cured.

You are paying for the sins of your parents.

You are paying for the sins of your forefathers; you should go listen to this pastor’s seminar on how to pray correctly to break the curse.

You do not truly believe that you will be healed, so therefore you won’t be.

If  you worked full-time you wouldn’t have time to think about your problems and you would feel better.

You should spend more time away from home and your family.

You need to go vegan.

You need to go vegetarian.

You need to go paleo.

You need to go gluten-free.

You need to go dairy-free

You need to adopt a raw diet.

You need to eat fermented foods.

You need to do a month long juice cleanse.

You need to go on a liquid diet.

You need to do the GAPS diet.

Essential oils in the proper combination can cure all ailments.

Get your chakras lined up properly.

Infrared sauna can cure your sicknesses.

Colonics eventually cures all sicknesses.

Vitamin C IV therapy cures everything.

If you didn’t worry so much your body would heal itself.

Have you tried mediating more often?

Your illnesses are all in your head.

Have you tried yoga?

You need to exercise more.

Ozone therapy will cure you.

Yea, I know how you feel having a chronic illness, I had a lot of morning sickness while pregnant.  You just need to rest more.

You should get rid of all indoor pets.

Visualize health and then you will be healthy.

Massage therapy will get rid of all the toxins stored in your body leading to a cure.

Acupuncture would heal you.

A RIFE machine has codes to cure all illnesses.

Using an infrared sauna cures everything if used regularly.

You should stop taking all meds and supplements.

You should start taking more meds and/or supplements.

You are taking the wrong meds and/or supplements.

You should check yourself into a good hospital and have them run all kinds of tests so you really know what is going on

You just need to learn to push through it, it makes you stronger.

 

Please know that I do NOT think any of the above suggestions are in and of themselves  bad.  In fact, I think many of the ideas could be beneficial to some, in addition to an appropriate health care plan.  I have just found it amazing that people, having no experience with chronic illness themselves, feel they are the ones to give the best advice.

I would love to hear the stupid(est!) advice you have been given.

Until next time…..

 

 

 

The Complete Tightwad Gazette: my favorite book for money saving tips

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If you are anything like me, you need to watch your pennies.  My chronic illnesses have put an enormous of strain on our budget requiring me manage it closely.  As with de-cluttering books, I have read many (and I mean many) books on how to save money, budgeting and frugality.  Some of the books were a total waste of time, others have been very helpful, but the one that changed my life more than any other money saving book is, The Complete Tightwad Gazette by Amy Dacyczyn.

The Complete Tightwad Gazette is not a typical book that reads like a story, instead it is based on the subscription newsletters that Ms. Dacyczyn published from 1990 – 1996.  Therefore, the book is divided up into smaller articles ranging from………..should you let a bar of soap dry out before using it, how to make a volleyball net with plastic rings from a 6-pack, to a basic muffin recipe, and everything in between.  Because the newsletters were published in the 1990s many of the money saving tips are now outdated and no longer relevant.  Despite the book having some out dated money saving tips, I found it extremely useful.  I did read the entire book cover to cover, all 959 pages, and it was the only book I have read that encouraged me to start thinking of as many ways as possible I could save us money, how to creatively use up what we already have, and make the most out of every single penny.   No other book has pushed me past my comfort zone, to think creatively and encourage me to search for even the smallest ways to save…………hey, it all adds up!

Because this book has been so wildly popular you should be able to check it out from your local library.  If you cannot find the Complete Tightwad Gazette, you maybe able to find one of the first three volumes:  one, two and three………the later ones would probably be more beneficial.  I have seen copies of her books at Half Price Books and Goodwill.  In my very humble opinion, it is worth the time and effort to find a copy of her book.

 

~ wendi, under the pen name Charlie, is the author of Frugal Seeds:  501 Ways to Save, Make or Stretch a Dollar

 

 

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