living our best life possible – organization

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Chronic illnesses tend to have a dreaded side affect of memory issues which can be  extremely frustrating.

Through the years, I have experimented with different approaches towards keeping myself organized and on track.  The ways have changed as the kids have grown,  but I have found that now they are in their busy stage of life, I must keep a very detailed  schedule.

At this time,  I use my cell phone and a wall calendar to keep track of daily appointments, celebrations, work schedules, really anywhere I need to be and when.  Then, I write out my daily to-do list on an index card so I can carry it with me throughout the day (if I don’t forget it, that is 🙂 )

Which leads me to this week’s questions, How do you keep yourself organized?

Please take a moment to share!  I deeply appreciate all of you who take the time to leave information in the comment section.  I have learned a lot from all of you and I am sure others have too!  Thank you.

 

 

~ wendi is the author of three books and can be seen here.

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living our best live possible – bad days

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This post is going to be different then what I have been posting recently, which has been my attempt at writing poetry.  I have enjoyed putting the words on the screen and deeply appreciate all the kind comments, deserved or not 🙂  so thank YOU!

This week I have been really struggling to come up with something to write.  This struggle caused me to reflect on why I started this blog in the first place.  My main purpose was to help others, who like myself, live with dreaded chronic illnesses.  When I began writing almost 2 years ago, I was so gung-ho, but the more I blogged and the more blogs I read, I became extremely intimiated by the high quality of writing and the vast amount of knowledge that so many others had, that I shyed away from my original intent.

So I decided that, at least for the near future, I will be asking those who grace me with your presence, to answer a different question each week, with each one relating to living our best life while chronically ill.

First, let me give Kim over at  I Tripped Over a Stone a HUGE shout out as she has inspired me to start asking questions.  Every week this amazingly beautiful soul asks her readers questions and the enjoyment I have received from answering and reading others responses has been surprising.  I encourage those of you who have not visited her site to please do so, thank you.

I realize that all of us suffer from different illnesses, affecting us in different ways.  But over the last 21 months I have come to realize that we share a lot more in common than not and we have so much to learn from each other.

So, without further ado, here is the first question:  How do you handle your very bad days?

For me, this is a tough one.  I have 4 kiddos at home and our situation is unique and one that I do not talk about as to protect the identity of my children.  But, even on my really bad days, more than likely I have to get out of bed.  So, I will drink some extra water, maybe be get into a hot shower, put on some loose comfortable clothing, try to drink a smoothie and take my supplements, and then pray for the best.  If I don’t have to get out of bed, I don’t, and I put on a movie, listen to an audiobook, YouTube, anything that does not require reading.

So, how about you guys?  How do you handle your bad days?  The more suggestions the better, you just never know who you may help.

 

fear

person wearing led mask

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fear

seeps into your mind like an early morning fog,

slowly expanding into all the open trenches

unfilled spaces

finding places in the mind you didn’t know existed

enlarging to leave no room for productive thoughts

protecting its position like a vicious dog guarding it’s home

settling in like the dust in the carpet

seemingly unnoticed and determined to anchor down for the long haul

 

I am ready to clean house

sweeping it out, not under the rug

searching for all the hiding places

wanting to turn this into a childhood game i no longer want to play

i will find you

searching, one-by-one, the hidden rooms of my mind,

evicting the fear and pain

refilling the room with light and love and hope

 

slamming the door shut with a vengence

securing the deadbolt and allowing the love to expand to fill each and every room.

 

white wall

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don’t give up

 

ball ball shaped blur color

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when the world seems stacked against you

and the wind is refusing to be at your back

 

lights appear to dim as you walk into a room

flowers wilt and die before your tired eyes

and those who are suppose to love you never seemed to care

 

these moments in life can overtake us

creating a sense of feeling unworthy, useless, spent

 

but you are so very beautiful and you are loved,

if not by those who fail to see your inherent worth,

 

remember you are cherished by the one who created you

and the beauty of life will reveal itself to you as

 

a new day will dawn

the fog will clear

and clouds will part

the rain will halt

the sun will shine

birds will sing

and flowers will bloom

 

 

 

you are worthy

turned on white pendant lamp

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YOU my dear are worthy of love

YOU were chosen to be here

hand picked to be on this Earth

there is only one YOU

only one

never before and never will there be another person as special as YOU

today, i celebrate your uniqueness, the qualities that make you special

YOU deserve respect

YOU are not alone

YOU are loved

 

thank YOU for being YOU

 

my prayer for you

art beach beautiful clouds

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that you experience true love

soaking in the sweetness of being loved for who you are

no matter what your failings, limitations or inabilities that may fill your body

 

that you feel safe in the arms of another

held when you are unsure or scared

lying closely as your heartbeats create a synchronous rhythm of comfort and respect

 

that your hand will be held with gentleness and caring to help guide you through life

you are comforted when ill

and protected when you are weak

 

that you find joy in their presence

your 1,000th kiss will feel like the first

and your day will not be complete without seeing the beauty of your love reflected back in their face

 

 

 

flicker

lighted candle

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pitch darkness is a space where you are forced to discover what you are truly made of and how you were created

veils fall off those who surround you, and their souls reveil as they truly are

terror strikes in isolating darkness,  not knowing what or who is around the next corner,  taking each step with a movement of faith, yet questioning where your faith lies

only in true darkness can you see flickers of light, from yourself, or from others in your life

allow that flickering of light, no matter how weak, illuminate your path

you were not meant for the dark, yet only by trudging through the darkness can you truly appreciate the light.

covered failings

ground group growth hands

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I was out with my entire family, something that rarely happens due to lack of funds and/ or my kids’ busy work, school and activity schedules.

During this rare treasured outing, my husband and I had purchased all of the kids a snack and they were sitting together on a bench eating, smiling, getting along and thanking us for the food.

In that moment, I became completely overwhelmed by what was playing out before me – happy, smiling, joking, loving, grateful, thankful kids.  Tears welled up in my eyes and I had a very hard time keeping myself from breaking down into uncontrolable sobs.  My son looked up at me and said, “mom, please don’t cry”  which made holding back the tears an even bigger challenge.

In the past, many of my tears were more about the guilt I have held onto for so long, raising kids while my illness took a front seat.  Having children before I knew I had these congenital illnesses, and the true horror of discovering that you have passed these nightmares onto the ones you love more than life itself.

But this is not what I was feeling in that moment.  Instead, I was caught up in pure love for my children, the extreme gratitude that God had blessed me with each one of them and felt me worthy of giving me such beautiful humans to care for.  God believed that I was worthy of being their mother, a gift I humbly treasure every – single – day.

Not only has God seen me worthy of such enormous blessings as my children, but that He has also covered over my failings, filled in the numerous cracks that I left as a ill and flawed human being.  He did what I had prayed and prayed that He would do, to make up for my many shortcomings as a parent, and despite my illnesses, allow my kids to grow up to be loving, caring, compassionate and unique individuals.  Prayers answered………and because of these gifts, my heart was too full with awe.  The happiness that flowed through my veins could not be contained within my body but instead flowed over and out my eyes………

They say that the window to one’s soul is through the eyes……….I hope my children could see that the tears were from the love overflowing in my heart for each one of them.

 

~ wendi is the author of two books that you can view here.

 

Unauthorised use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. 

soar

bird animal freedom fly

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Shatter the cage your body imprisons your mind with

Allow your spirit to remain free

To soar above the pain,

chaos

and

confusion

fear

and

uncertainty

Instead observe the magnificent beauty that surrounds you

Hidden by your perceived reality

 

~ wendi is the author of two books, which can be viewed here

 

Unauthorised use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited.