living our best life possible – JUST SAY IT!

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Through all the years I have lived with chronic illnesses, I have felt the pressure to say that I was ok, even when I absolutely was not.  These pressures may have come from my internal desire to be well, not wanting to admit that I was sick, or living, if only briefly, in a fantasy world of being normal.  Or it could be a result of societal pressures, of people not wanting to know the truth of illness, or hear about others’ problems because it is way more fun to listen to happy stories.  Maybe it was because I heard, “you don’t look sick” one too many times.  Maybe I was tired to hearing people tell me how so-and-so was cured from some new thing.  I am guessing it is a combination of reasons.

I have always felt looked down upon when I spoke the truth.  That I was being judged for being ill, that somehow it was my fault, and that I was not working hard enough at healing.  Whether or not this was true, it was how I felt, so it was my reality.

There are days I want to open my back door, step outside and scream, “This sucks ass!”  Yep, I just swore, trust me, God can handle my truth, even if others can’t.  Who am I expecting to hear this?  My chickens?  My neighbors?  No, just every single person I have ever lied to when I said I was ok.

So, is there something you have always wanted to say about your illness, but have been too afraid?  Something you have wanted to scream to the world, yourself, or others?  NO JUDGEMENT HERE!

Sometimes is takes us being very, very honest with ourselves and others before we can even have a snowball’s chance in hell to begin the very long road to healing. 

 

what would you do?

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I had another post ready to go for today, but after an unusual experience last night,  I wanted to share this instead.

Last evening, four of my family members were heading out to get some groceries.  About 20 minutes from home we hit a very large pothole that instantly blew out 2 tires on our van.  We were thankful it was very close to a church with a well-lit parking lot.

AAA was called and when the tow truck arrived there was not enough room for all of us to leave.  It was decided that my husband would leave with the driver and our van, and my two teenaged daughters and I would stay behind in the parking lot.

We felt blessed that it was above freezing and not raining or snowing.  We all had coats on, something that my teenagers do not always grab on the way out of the house, and there was a blanket in the van.

There were vehicles in the church lot but the building was big and we did not want to start knocking on doors and possibly scare the people inside.  Instead, we decided to just stand and wait.

As we waited under a large light in the front lot, people started to leave the church.  One vehicle after another drove slowly by looking at us, but no one stopped.  We did not look scary, it was a mom with two teenage daughters, all dressed appropriately, other than I had a blanket wrapped around me.  The lack of “hospitality” resulted in a very deep conversation between my daughters and I, something that I will keep between the three of us, but I was really hoping that the people leaving the church would have behaved differently.  Not just because it was a church, but because we were in the country, off a busy road, alone, after dark.

As the last vehicle was leaving, a mom and her teenaged daughter stopped to ask if we needed anything.  I thanked her profusely, explained the situation and reassured her that someone would eventually be back to pick us up.

So, what would you have done in that situation?  (NO judging)  Would you have stopped, or not, and why?

 

To Those Who Care For Others…..

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On the day that many associate with love, I would like to send a HUGE thank you to those of you who help care for others.  Chronic illness puts an enormous strain on relationships and too many people who are stricken are eventually abandoned to continue their fight on their own.  When I read about situations like these, it literally breaks my heart.  No one ever wants to rely on someone else to take care of them, but life has a way of putting us in situations that we do not deserve or desire.

So to all you caregivers out there, Thank You again for giving of yourself so unshelfishly, for staying, for loving, for listening, for assisting, for praying, for loving and for encouraging healing.  You have no idea what a huge blessing you are for those of us lucky enough to have you in our lives.

Te quiero me amor!  

living our best lives – pets

orange tabby cat beside fawn short coated puppy

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Until one has loved an animal, a part of one’s soul remains unawakened.”
― Anatole France

 

I am a firm believer that my furry friends, both past and present, have enriched my life in numerous ways.  Some of my very best memories include time I have spent with my pet buddies.

I was raised with animals.  My family had pets in the house as long as I can remember;  cats, dogs, a rescued racoon, duck hatchlings, a rabbit, a snake, fish, gerbils, and guinea pigs.  As I grew older and began raising a family of my own, I have also chosen to share my home with rescued dogs and cats.  As many people who rescue animals know, it is really you who is being rescued.

Being chronically ill, pets have a very special place in my life.  Spending much more time at home and in bed then the average person, I have had the blessing of spending a lot of time with my pets.   Virtually every time I have felt too bad to get out of bed, my doggie curls up and lays right next to me.  There is something especially relaxing, calming and comforting having a living soul breathing next to you.

The question this week is,  Do you have pets, if so what type and how do they enhance your life?

Wishing you a day of peace.

Calling authors who live with a chronic illness!

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One of my 2020 goals for simplychornicallyill is to review 6 books from WordPress bloggers who live with a chronic illness (or three).   Currently, I have two publications on my to-review list,  but I am searching for three more books to read this year.  My first review of 2020 was The Shadow Boxers by Kim Johnson & Karen Anderson and you can find my thoughts here.

So, if you are a chronically ill  and have published a book, or know of a WP blogger who is chronically ill, please send them a link to this post.  All I need is the title of your book and I will purchase it with my own funds, give you a review on this blog, and hopefully help bring more attention to your work.

Thank you in advance for the chance to assist another chronically ill author.

 

` wendi is author of 3 books and you can check them out here.

The Shadow Boxers – a book review

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I am super excited to kick off my 2020 book review series with, The Shadow Boxers – Fighting Fibromyalgia – Your Personal Journey by Kim Johnson & Karen Anderson.  My goal is to review 6 books, all written by individuals living with chronic illness(es).  If you are an writer and would like me to review your book, at my cost, please send me a message.

The Shadow Boxers was purchased from Amazon using personal funds and the review is completely my own.

 

My initial impression of the book is that I really liked the size.  It is not too big or small and fit in my hands perfectly.  This may seem like an unusual observation but I have purchased books that were just too small for my hands to hold easily and therefore caused pain or too big and akward to hold, again causing discomfort.  The print is also a good size, making the words easy to read.  Another bonus is the colors on the cover of the book are easy on the eyes creating another asthetic win.

Shadow Boxers covers all the basics of fibromyalgia, which I have to admit, although I thought I knew a lot about the illness, I still learned quite a bit.  The authors’ used not only their stories, but stories of others, allowing us to take a peek into the life of those who live with  fibromyalgia and how the illness can affect people in different ways.

But what I loved most about this book is that it is for you to write in.   You are an active part of the book, the main character, and with that honor it is imperative that you do your part.   Each chapter is followed by a one sentence prompt and it is a place for you to express your own thoughts and feelings, with enough space to write a rather lengthy commentary.

Although I did not write in the book, I did use the prompts to express my own thoughts and I found what I wrote to be quite insightful, I just substituted fibromyalgia for the main illness that I deal with.  Active participation is a MUST to get the most out of this book……..it is meant to be written in, to explore your own feelings, to express your frustrations and your inner most thoughts.  Once you have made your way through the book, it would be like having a productive counseling session and a whole lot cheaper.

Kim can be found blogging at I Tripped Over a Stone and I highly recommend you check her out………she is an amazing human being and force to be reckoned with!

 

Saving Money in the New Year

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OK, so I am not officially back blogging yet, but I did want to take a moment to announce that for the month of January and, stretching through February 3rd, I have lowered the price of my book, Frugal Seeds 501 Ways to Make, Save or Stretch a Dollar, in both print and ebook form.

This book shares many of the ways that my family of 6 used to pay off all of our medical and consumer debt and ways we continue to use as we work to pay off our mortgage.

The book can be viewed here and, as always can be read for FREE with KindleUnlimited.

I look forward to seeing everyone again in February!

Merry Christmas, Happy 2020 and Thank you from the bottom on my heart

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I would like to take this moment to wish all of you amazingly wonderful people, who use part of your precious time to visit me here at SimplyChronicallyIll, a very Merry Christmas and a safe and healing New Year!

Thank you for being such supportive, kind and encouraging people that allow me to see the best that humans have to offer.  It is such an honor to be part of the WP bloggers.

I will return in February when I look forward to seeing all of you again.  Please remember to be kind to yourself and each other, this world can be a brutal place and you may be the only kindness someone experiences.

 

“Imagine what our neighborhoods would be like if each of us offered, as a matter of course, just one kind word to another person.”

~ Mr. Fred Rogers

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books by chronically ill writers

eyeglasses on opened book beside cup of coffee on table

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With 2020 just around the corner, I have been thinking about blog posts for next year.  One of my goals, besides keeping the Living Our Best Life weekly questions, is to review at least 6 books that are written by an author who is chronically ill.

Not only do I know what it is like to live with multiple chronic illnesses, I also know how much work goes into writing and self-publishing a book and the enormous amount of effort it takes to promote your publications.  So next year I would like to help out my  fellow spoonies and promote their work.

If you would like me to do a review of your book, that I will purchase, please leave me a message in the comment section.  The book does not have to be about  illness, but the author must live with at least one chronic ailment.

I look forward to reading your work!

 

~ wendi is the author of 3 books that you can view here  and all her books can be read FREE with KindleUnlimited

living our best life – giving

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During the holiday season, we tend to spend time reflecting on upon our past.  There is something about the music, the lights, the gathering of friends and family and religous services that can send our minds straight back to when we were a child or those special moments shared with a significant other.

Despite the societal push to buy, buy, buy, when I think about past holidays I rarely remember the gifts, but instead the emotions I felt during the celebrations.

I have always found it much more enjoyable to give gifts and watch a person’s face light up as the package is unwrapped.  As the old saying goes, it is much better to give then to receive and I have always believed this to be true.

So my question for all you amazing people this week is, What gift have you given that still makes you smile when you think about it?  

Thank you for taking the time to comment…..

 

” I will honour Christmas in my heart, and try to keep it all year.”

~ Charles Dicken, A Christmas Carol